Follow
分享

My sister is 81, husband 86, he had a stroke 9 years ago resulting in cognitive decline (no bodily damage). She is now suffering from caregiver burnout. One daughter who lives in same town and sees them daily, believes that father should move to assisted living for people with issues and her mother to apartment nearby. The other 3 siblings (live in different town/states, see parents rarely) say that is not necessary, that the folks are fine ! They "perform" in front of their children and can do so for a day or so. (Our mother accomplished this VERY well, she "performed" for our brothers - they told us we were nuts.).
Daily living is quite different: he criticizes my sister all day long, with issues that happened 40 years ago. In addition to the constant repetitive questions and other such behaviors. She has begun to yell back at him due to burnout. Both feel very hurt by the other person.
一个住在同一城镇的孩子已经迈出了搬迁到居住/独立的公寓的步骤。其他兄弟姐妹抵制 - 说如果母亲服用焦虑药,她会没事的,他们从此以后会幸福地生活。父母彼此非常相爱,但不能再应对痴呆症的压力。但是,当3次访问中的任何一个中的任何一个都非常正常,因为这是1-3天的持续时间。我的姐姐“行为”是因为她非常担心他们对自己的看法。镇上的一个女儿一次安排了一个星期/10天。目前,我姐姐有一个月的喘息时间。一旦她再次回家,情况只需要几天就会恶化。
想知道其他人是否有这种经历。在所有在线信息中,我无​​法在认知下降/痴呆症文章中找到这一点。我希望找到3个兄弟姐妹的验证信息,以帮助他们理解。我在临终关怀中志愿服务,并有2个人有同胞问题,所以我认为这不是一个独特的情况。

What's happening is known as 'Showtiming' or 'Showboating' and is quite common before dementia becomes too advanced. The elders put on a show or a performance for those they are trying to convince they're just fine, and are able to make small talk quite nicely, even able to convince some doctor's they're okay! My mother is the queen of such 'showtiming' and she's in the advanced stages of dementia these days. She's great with the 'don't you look lovely today and how is the family doing?' types of statements, but ask her a question and that's when the show is over. The small talk & social behavior is embedded in their muscle memory and shows up when needed, so that's what's probably going on with your folks.

当我父亲90岁时,他摔倒并摔断了臀部。他没有痴呆症。然而,当时我的母亲是87岁,当时在通往痴呆症的道路上很好。他们当时生活在独立的老年人中,但是由于髋关节事件后,由于流动性问题,爸爸需要辅助生活。因此,我将他们俩一起搬进了辅助生活。即使妈妈以痴呆的行为驾驶爸爸发疯,这一切都很好。在她折磨了68年后,他不想与她分开,他已经习惯了。10个月后,他最终逝世了,妈妈仍然活着,近95岁,现在住在同一AL设施的记忆护理区。

Anyway, here's an article on the very subject of showtiming:

https://coping.today/what-does-showtime-mean/

如果您搜索了主题,那么很多事情都会出现。

Wishing you the best of luck with a difficult situation.
有帮助Answer (9)
Reply to lealonnie1
报告
Cheryl44 Nov 30, 2021
非常感谢,showtime卖弄是新的words for me. I will definitely follow-up. So grateful to find a word that describes the concept.... THANK YOU again.
(4)
报告
OMG yes! My father does this thing with my sister on the phone where he just asks her "what's up with you" and she talks and talks and then calls me later and says "he's fine, I don't know why you keep insisting something is wrong with him." :)
有帮助Answer (8)
回复DOMYBEST73
报告

My Mom is the same way. Although she is not suffering from any severe dementia she always covers up any problems when my brother comes to visit. I live with mom and I hear her daily complaints and witness her daily sadness. She will not address these issues to friends or family - only me - and I get the brunt of it.

I'm tired of her acting like she is just fine when she speaks to my brother or her friends. She say's I am her "confidante". I don't want to be her confidante. I want her to at least be honest about her medical situations with my brother.

有时候,每天的抱怨很难忍受,然后与她的朋友和家人聆听她的快乐。我觉得我自己正在接受所有这一切。
有帮助Answer (7)
回复Summernole
报告

My mom could have won an academy award for her visits to her Dr. It was just unbelievable how well she could fool them. Then when she knew her ability to pull it off came...she refused to go.
有帮助Answer (6)
Reply to Pwheeler
报告
Cover99 Nov 30, 2021
哈哈
(0)
报告
在a word: definitely. As my mother declined I realized she was 'pretending' many routine activities, like sitting at the breakfast table 'reading the paper', etc. When I'd mention news items for conversation it was clear she had no idea what I was talking about, would conflate different details that revealed her mind was becoming essentially like 'Swiss cheese,' very sad but telling, helpful for understanding her true condition. Even her doctor stated she had fooled him, so good at 'covering up' her true deficiencies when in his office, 'performing' for him since going to the doctor was a kind of 'date' in her mind, where she got 'attention' from someone not her immediate family. It was bittersweet, because I knew she desperately wanted to stay in her own home, and to 'will' herself to be 'normal' when clearly she was not any longer, but her own stubborn denial and determination to remain 'independent' worked against her in the long run. She began having falls, then suffered a stroke which killed her (brain bleed) before she could be placed where falls and early death might have been prevented. When relatives would visit, mom would act 'just fine', while never letting them see her do much more than sit at the kitchen table and drink coffee with them. I believe it is a 'survival mechanism' in a sense, even though it can work against a person. Have your siblings spend more time, or even arrive when not especially expected, (or take videos if feasible!) so they get a more 'unrehearsed' experience with your mother.
有帮助Answer (6)
Reply to Santalynn
报告
2021年12月1日
亲爱的圣塔琳,

拥抱!!我为失去母亲感到非常抱歉。

你写了:
“她开始跌倒,然后遭受了中风,在她被放置在跌倒和早期死亡的地方之前杀死了她(脑流血)。”

。..of course, only you know all the facts...
sometimes, however, it's better to die at home...than than have more years (maybe unhappy?) (i understand some people are happy, but many people are miserable) in a facility.
。..some people in facilities are surrounded by doom/gloom/death/maybe new friends, but the friends are dying/die/depressing/screams, noises at night/hard to sleep...i wouldn't be surprised if some of us spent a full 48 hours in a room in a facility, we would run away.

some people would maybe say your mother was lucky.
希望她在家里尽可能快乐地生活,然后死了。

(there are people who really hope they die before they reach the stage of needing a nursing home.)

it's not about quantity (how many years old you get, when you're elderly)...rather quality. if you've already had a full life, then for many people, as much as possible, they'd like to finish their lives at home.

a very early death is a totally different matter.
我说的是年长的人,他们过着充实的生活...

sending many hugs!! :)
(4)
报告
Yes. It's very real, and the more often you see the person the less showtime you get. As long as your sister's competent then she should be making the call, and the out of town siblings should be listenting to the in-town person.
你可怜的姐姐。
It's shocking that the out of town kids can't be more supportive and that they feel like they can tell their exhausted mother, at 81, to take some pills and handle it. And they need to stop second guessing the in-town sibling as well. Must be nice to not put in the time but be able to proffer expert opinions. They need to support getting him into care and let her try to have some peace, as she has to watch this debilitating disease take the soul and personality of the man she loves.
There are some articles out there, but I encourage them to look it up on the Alz.org website--plenty of threasds there! Here are a few:
You'll have to copy and paste them into your browser's search bar.
https://www.alzconnected.org/discussion.aspx?g=posts&t=2147551005
https://www.alzconnected.org/discussion.aspx?g=posts&t=2147533545
https://www.alzconnected.org/discussion.aspx?g=posts&t=2147556665
有帮助Answer (5)
Reply to ElizabethY
报告
Cheryl44 Nov 30, 2021
Many THANKS for the info: I will be following up today. Unfortunately, sometimes family relations "blossom" in times of trouble. My niece has made application for an "assessment" of both her parents - hopefully the reports will help the other siblings understand what is going on...
(6)
报告
I called it "company manners." No one knew my mom had dementia for the first four years she had it, and she was so convincing that a visitor to her nursing home believed her when she told him she'd remarried just four months after my dad's death and 66 years of happy marriage. The visitor was so pleased for her that he put it in the local Rotary Club newsletter and the whole town heard about it. Needless to say, all hell broke loose at that point, and I had to do some major crisis management.
有帮助Answer (5)
Reply to MJ1929
报告

我希望理解情况严重性的当地女儿有POA。如果没有,她应该与父母和律师一起工作,以尽快订购他们的文书工作。然后,她应该尽快让父母辅助生活。这是一个很好的计划,谁在乎其他兄弟姐妹对此的看法。希望他们在决策中确实没有发言权。他们不知道每天发生什么。您姐姐现在需要休息一下。对于她来说,这显然太多了。
有帮助Answer (4)
回复再次x100
报告
Cheryl44 Nov 30, 2021
谢谢 !是的,她正在从事法律文书工作...我的侄女已经联系了老化机构,这方面的工人最有帮助。
(3)
报告
Cheryl44: What is occurring is known as 'showtiming.' Elders who are declining are oftentimes able to portray a 'role' for brief durations of time. This is possible because the individual witnessing this 'play,' if you will only sees the elder occasionally, making it seem VERY believable. The elder does this so that everything in their life remains STATIC, unchanged. Although my late mother only had normal aging at 94, she was able to 'showboat,' and many of her friends declared that there was nothing wrong with her. That was an untruth and the reason why had to leave my home 7 states away and move in with her.
有帮助Answer (4)
回复Llamalover47
报告

Ask the "occasional visitors" to stay and take care of the parents for a week without the usual care by the daughter/sibling. The occasional visitors would soon get the clear picture. Of course, the daughter is not helping the situation when others visit since she is also tending to cover for mom and dad.

Since the caregiver is having problems with unresolved burnout, she should be the one to help make arrangements for her parents' care. Since the others are not part of their parents' usual care, it would be better from them to trust their sibling caregiver.

If needed, ask their usual caregiver to get mom and dad tested for cognitive and behavioral issues. Referrals to neurology and geriatric psychology may help to document these issues from a trusted, objective professional.
有帮助Answer (3)
Reply to Taarna
报告

查看所有答案
Ask a Question
Subscribe to
我们的Newsletter
Baidu